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2nd MEGMA Conference on Thalassaemia and Other Haemoglobinopathies

Date 11 -12 November 2016   Find out more and register

Are you completely happy with your thalassaemia services?

Are there things you want to change? It is essential that we in the thalassaemia community take every opportunity to make our voices heard. For example, when UKTS asks about “out of hours” transfusion facilities to make life easier for working people, we are used to being told by NHS managers “There’s no demand for it”. If we are to counter this kind of argument, we need evidence from our members on this and all the other issues which affect people who have thalassaemia. 

Read more and download the survey here. 

Access to New Treatments for Hepatitis C

Hepatitis C Information

Hepatitis C is a viral disease which affects the liver. It can go undetected for years, during which time it can cause significant damage... 

Find out more and about or work with the Hepatitis Coalition here

Hepatitis C Position Paper

Thalassaemia International Federation's final position paper on Viral Hepatitis C in Thalassaemia - 2015.

Download the paper

Public Health England announced that Marie Stopes Int.


a sexual and reproductive healthcare provider, will be suspending a number of services including some terminations of pregnancy. This is further to concerns raised by the Care Quality Commission regarding governance arrangements. NHS England has said that any women affected by this decision will be diverted to alternative services.

If any members of the public have specific queries they can contact the Public Health England advice line 0300 123 1041 (9am to 5pm at the weekends and 9am to 8pm during the week)
Comments and queries can also be sent via the screening helpdesk.




Preimplantation Genetic Diagnosis (PGD) 

PGD started nearly 25 years ago and thousands of babies have been born worldwide since then. In our centre we have been offering PGD to couples at risk of having children with serious genetic disorders since 1997 and are now in our 17th year of service. Over that time there have been many changes to what is offered and a significant increase in the number of referrals and PGD treatment cycles. Read More

NHS Prescription and other NHS Charges

The National Health Service Act 1946, which set up the NHS, contained a provision that NHS services should be provided free of charge unless that Act expressly provided for a charge.
Over the years amendments to legislation have been made allowing charges for NHS services including prescription, dental and optical charges..... More

Also read about the Prescription charge increase will hit patients say charities read how it affects you.

Rogues Picture Gallery

Conference And Event's Photos. 

They say a picture is worth a 1000 words. 

Until then catch-up with what thals are up to in the rogues gallery.

Give a little

We dont need the iron but we need your silver. By donating just a few pounds a month you help us to continue funding research into this potentially deadly condition which affects children and adults throughout the U.K. 

Donate via the web, sms text or our on-line shoping portal. 


Videos 'n Stories

A selection of educational videos for parents, patients and health care professionals. 
Real life stories from carriers, patients and carers who give their account of what sickle cell or thalassaemia means to them.

Watch the films

Get Social with Us

Make sure you get the latest information by following us on Twitter.

Dont forget we want to hear from you, tell us your news. 

Library & Video Section

Check out the new video section in the library.   More