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11th Annual Sickle Cell and Thalassaemia Conference
11th – 13th October 2017 Find out more and register
Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK
Newly published 3rd Edition of the standards (May 2016)
Clinicians embracing these standards will see improvements in their services and the Peer Review process is also key. This document should be an invaluable source of information to commissioners when developing future services for patients. Well done to the Editor and authors. This is an important piece of work.
Professor Dame Sally C Davies FRS FmedSci
Chief Medical Officer for England
Access to New Treatments for Hepatitis C
Hepatitis C InformationHepatitis C is a viral disease which affects the liver. It can go undetected for years, during which time it can cause significant damage...
Find out more and about or work with the Hepatitis Coalition here
Hepatitis C Position PaperThalassaemia International Federation's final position paper on Viral Hepatitis C in Thalassaemia - 2015.
TIF International Conference
Online Registrations will open on 12 May 2017 at www.tifevents.org
Date: 17 – 19 November 2017
Venue: Thessaloniki, Greece
The Management Committee of the UK Thalassaemia Society has decided to offer a subsidy of £350.00 for patient members who wish to travel to the international TIF conference in November. For conference information and registration please visit the conference website.
Please note that only thalassaemia patients who are paid-up members of the UK Thalassaemia Society will be eligible to apply (see policy document for full details).
Send your application forms to Elaine Miller by email firstname.lastname@example.org or by post to the office.
Preimplantation Genetic Diagnosis (PGD)
PGD started nearly 25 years ago and thousands of babies have been born worldwide since then. In our centre we have been offering PGD to couples at risk of having children with serious genetic disorders since 1997 and are now in our 17th year of service. Over that time there have been many changes to what is offered and a significant increase in the number of referrals and PGD treatment cycles. Read More
NHS Prescription and other NHS Charges
The National Health Service Act 1946, which set up the NHS, contained a provision that NHS services should be provided free of charge unless that Act expressly provided for a charge.
Over the years amendments to legislation have been made allowing charges for NHS services including prescription, dental and optical charges..... More
Also read about the Prescription charge increase will hit patients say charities read how it affects you.
Rogues Picture Gallery
Conference And Event's Photos.
They say a picture is worth a 1000 words.
Until then catch-up with what thals are up to in the rogues gallery.
Give a little
We dont need the iron but we need your silver. By donating just a few pounds a month you help us to continue funding research into this potentially deadly condition which affects children and adults throughout the U.K.
Donate via the web, sms text or our on-line shoping portal.