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2nd MEGMA Conference on Thalassaemia and Other Haemoglobinopathies


Date 11 -12 November 2016   Find out more and register


Standards for the Clinical Care of Children and Adults with Thalassaemia in the UK


Newly published 3rd Edition of the standards (May 2016)

Clinicians embracing these standards will see improvements in their services and the Peer Review process is also key. This document should be an invaluable source of information to commissioners when developing future services for patients. Well done to the Editor and authors. This is an important piece of work.


 Professor Dame Sally C Davies FRS FmedSci
Chief Medical Officer for England


UKTS Standards Web Site


Access to New Treatments for Hepatitis C


Hepatitis C Information

Hepatitis C is a viral disease which affects the liver. It can go undetected for years, during which time it can cause significant damage... 


Find out more and about or work with the Hepatitis Coalition here

Hepatitis C Position Paper

Thalassaemia International Federation's final position paper on Viral Hepatitis C in Thalassaemia - 2015.


Download the paper


Public Health England announced that Marie Stopes Int.

 

a sexual and reproductive healthcare provider, will be suspending a number of services including some terminations of pregnancy. This is further to concerns raised by the Care Quality Commission regarding governance arrangements. NHS England has said that any women affected by this decision will be diverted to alternative services.

If any members of the public have specific queries they can contact the Public Health England advice line 0300 123 1041 (9am to 5pm at the weekends and 9am to 8pm during the week)
Comments and queries can also be sent via the screening helpdesk.

 

mail: phe.screeninghelpdesk@nhs.net.

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Preimplantation Genetic Diagnosis (PGD) 


PGD started nearly 25 years ago and thousands of babies have been born worldwide since then. In our centre we have been offering PGD to couples at risk of having children with serious genetic disorders since 1997 and are now in our 17th year of service. Over that time there have been many changes to what is offered and a significant increase in the number of referrals and PGD treatment cycles. Read More

NHS Prescription and other NHS Charges


The National Health Service Act 1946, which set up the NHS, contained a provision that NHS services should be provided free of charge unless that Act expressly provided for a charge.
Over the years amendments to legislation have been made allowing charges for NHS services including prescription, dental and optical charges..... More


Also read about the Prescription charge increase will hit patients say charities read how it affects you.

Rogues Picture Gallery

Conference And Event's Photos. 


They say a picture is worth a 1000 words. 

Until then catch-up with what thals are up to in the rogues gallery.


Give a little

We dont need the iron but we need your silver. By donating just a few pounds a month you help us to continue funding research into this potentially deadly condition which affects children and adults throughout the U.K. 


Donate via the web, sms text or our on-line shoping portal. 

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Videos 'n Stories

A selection of educational videos for parents, patients and health care professionals. 
Real life stories from carriers, patients and carers who give their account of what sickle cell or thalassaemia means to them.


Watch the films

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Library & Video Section

Check out the new video section in the library.   More