Welcome to UKTS

International Thalassaemia Day

International Thalassaemia Day on May 8th Competition

The competition is open to UK residents of any age (yes that means your gran can enter too). All you have to do is host an event (coffee morning, school assembly, lunch -anything you can think off) or do a creative piece and share it on social media in order to raise awareness of thalassaemia!    Terms and conditions apply

Prizes will be awarded for the most inventive and exciting idea/ event that reaches the most people!

Don’t miss out on a chance to win hundreds of pounds of Amazon vouchers!!

Remember to use the hashtags:

#ThalassaemiaMattersToo
#ITD2019
#teamukts

Parents Stories

In March 2015 the Sickle Cell and Thalassaemia Screening Programme Advisory Group set up a sub group to focus on the timeliness of antenatal screening and prenatal diagnosis. The subgroup included parents of children with sickle cell disease and thalassaemia, representatives from UKTS and the Sickle Cell Society and representatives from midwifery, obstetric and genetic counselling professional organisations.

Sickle cell and thalassaemia screening

Screening is the process of identifying people who appear healthy but may be at increased risk of a disease or condition.

Healthcare professionals will offer information, further tests and appropriate treatment to reduce their risk or any complications arising from the disease or condition.

The NHS Sickle Cell and Thalassaemia (SCT) screening programme is a genetic screening programme. This means that it also identifies people who are genetic carriers for sickle cell, thalassaemia and other haemoglobin disorders.
Continue reading “Sickle cell and thalassaemia screening”

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The Hepatitis C Coalition is a group of leading clinicians, patient organisations and other interested parties committed to the reduction of morbidity and mortality resulting from hepatitis C, and the eventual elimination of the virus.

Some 214,000 people in the UK are thought to be living with chronic HCV. Many of these do not know that they have the virus and at present only 4% of those chronically infected receive treatment each year – an unacceptably low number.

Yet with the right diagnosis and treatment, HCV is curable, thanks to new therapies that are now available. Research from the London Joint Working Group on Substance Use & Hepatitis C (LJWG) found it was cheaper to treat chronic hepatitis C virus (CHCV) than to allow the disease to progress, and that treating just 10% of those people with HCV could save £200 million in London alone.

 

 

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